Fruit fly genes yeilding clues to a deadly disease
The article by Staff Writer Tom Avril (Philadelphia Inquirer, June 28, 2010) highlighted research, funded in part by AFTD, that is studying inclusion body myopathy associated with Paget’s disease of bone and frontotemporal dementia (IBMPFD). The article included comments from AFTD grant recipient J. Paul Taylor, MD, PhD, and AFTD Medical Advisory Council Members Virginia Lee, PhD, and John Trojanowski, MD, PhD.
Disordered by Klaas Jansma and Pieter Wolswijk
This three-part documentary on Frontotemporal Dementia (FTD) shows how the lives of three patients have changed and how this has affected the people around them. Klaas Jansma is a psychologist involved in the Dutch National Steering Committee for Young People with Dementia. Pieter Wolswijk is a geriatric psychologist and freelance filmmaker. This documentary is an initiative of the Intercollegiate Group of Geriatric Psychologists in the Arnhem Region, the Netherlands. Read a description or view a movie trailer at http://www.youtube.com/watch?v=KVOnX4uGk0s.
Price: $27 inclusive of shipping and handling. For each copy sold in the USA and Canada, $3 will be donated to AFTD.
Available through: Klaas Jansma via email at krjansma@hotmail.com
Sweetest at the End
By ELINOR LIPMAN
Published: New York Times
April 9, 2010
“Disease could have turned Bob violent. He had it another way.”
Elinor Lipman is an acclaimed writer of essays, newspaper columns and eight novels, one of which, Then She Found Me was adapted into a feature film in 2007 that was directed by and starred Helen Hunt. Five years ago she wrote a series of columns for the Boston Globe that revealed the daily adventures of married life with her love, Bob. In a recent article in the New York Times, Elinor Lipman writes of her husband again. Her description of his struggle with frontotemporal dementia reveals a love that will touch every reader, especially those who see a reflection of their own experiences with the disease.
AFTD’s 2010 Spring newsletter is now available on-line.
Register with AFTD to receive future issues directly by email or regular postal mail. Submit your contact information and tell us your preference via the home page www.ftd-picks.org or call 866-507-7222.
On April 6, 2010 the Alzheimer’s Drug Discovery Foundation (ADDF) and the Association for Frontotemporal Dementias (AFTD) announced the recipients of their third annual research award, Frontotemporal Dementia Drug Discovery Program. The goal of the program is to accelerate the development of novel therapies for frontotemporal dementia (FTD). The program will provide a total of $1,200,000 in research grants over four years.
Read the press release.
Read more about the ADDF-AFTD Drug Discovery Partnership and prior year awards.
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