Chicago Family Offers Unique Prize at Benefit Auction

The Pierce family held their annual golf outing and auction on July 25th. Among the prizes to be won was one-on-one time with the Heisman Trophy. Click here to read the article.

FTD Included for First Time in National Plan to Cure Alzheimer’s Disease and Other Dementias

Frontotemporal degeneration (FTD), a disease process that results in progressive damage to the temporal and/or frontal lobes of the brain, has been formally included in national research priorities to cure Alzheimer’s disease and other dementias by 2025, the Association of Frontotemporal Degeneration (AFTD) announced today. The update to the NAPA plan also coincided with AFTD’s release of a comprehensive research white paper, FTD Research and Drug Development Landscape Analysis.  For the full press release, click here.

AFTD Creates Website for Kids Dealing with Rare Dementia

Isolation, confusion and fear characterize the experience of children in a family where mom or dad has been diagnosed with frontotemporal degeneration (FTD), a rare, young onset dementia. A new website,,  provides a lifeline for children and teens in affected families.  For the full press release, click here.

Family Opens Up About Experience with FTD

The Harvey Family of Connecticut, who lost their husband and father, Kevin, in 2012, were recently interviewed by a local television station about their family’s experience with FTD. They have worked tirelessly to spread awareness of the disease, to raise money for a cure and to help other families in Connecticut who are dealing with a diagnosis of FTD. To see the interview, click here.

Powerful Patient Podcast

Katie Brandt, AFTD Regional Volunteer Coordinator for New England, was interviewed July 24 on a Powerful Patient podcast. To listen to the podcast, click here.