Brain Atrophy Patterns Support Distinct Subtypes of Frontotemporal Dementia

FTD Symptoms range from sluggish apathy to obsessive compulsion, and numerous genetic mutations and neuropathologies can underlie each person’s disease. Variation in behavioral symptoms may be explained by degeneration of specific neural networks, according to a study published in the July 18 JAMA Neurology. Researchers led by Bruce Miller at the University of California, San Francisco, reported that some atypical social behaviors—including recklessness and failure to pick up on common social cues—correlated with specific patterns of neurodegeneration in two different neural networks in the brain, while other behaviors showed no such relation. Read the entire Alzforum article here.

Knowing When it’s Alzheimer’s, and When it’s Not

The trouble started in 2010 when Dennis Krupinski was just 53. A longtime employee in Walt Disney World’s maintenance department, he started losing things and forgetting about tasks. He seemed distracted, confused. After a major mishap at work, his wife, Terri, encouraged him to see a doctor. Read more about their story here.

A Rare Form of Dementia Slowly Took My Husband and Made Me a Widow at 36. But These 9 Words Changed How I Lived

Mother of four children and FTD advocate, Tia Singer Willin, tells her harrowing story about how FTD took the life of her husband, Ryan, at the young age of 38. She explains in heartbreaking detail how his personality drastically changed, and no one could accurately diagnose what was causing his erratic behavior. All of the years trying to figure out what was wrong, she and her family lost valuable time. Read her story here.

When Dementia Isn’t Alzheimer’s – FTD Awareness

Recently published on, writer and caregiver Sharon Hall explained that not all dementia is Alzheimer’s and challenges readers to join in the fight to increase FTD awareness. Read her powerful story here.

Using Film to Educate and Inspire

AFTD Volunteer and FTD advocate Katie Brandt lost her husband to FTD in 2012 when he was only 33 years old. After various advocacy efforts, including presenting at the State House and Capitol Hill, Katie decided to take her efforts to a new level and produce a 5-minute film titled, Love Is Out There, which received the runner-up prize at the American Academy of Neurology’s (AAN) Neuro Film Festival. Read more here.