Help Bring AFTD Food for Thought Campaign to All 50 United States

Planning is underway for AFTD’s third annual Food for Thought grassroots campaign. This campaign works to raise both awareness and funds for the fight against frontotemporal degeneration (FTD), a disease process that results in progressive damage to the temporal and/or frontal lobes of the brain. Each year during FTD Awareness Week (October 4-11, 2015), individuals host Food for Thought events across the United States of America. Food for Thought events combine sharing food with local community members with some form of FTD education. Event hosts make a meal for family and friends, host a bake sale, or engage a local restaurant to give back a portion of a night’s sales.

This year, as FTD Awareness Week becomes an international event, AFTD hopes event hosts will bring FTD awareness to all 50 states! To date, we are halfway toward our goal. We invite you to join us by completing the Food for Thought contact form to place your state on the map! More information about Food for Thought, as well as event ideas, planning tips and more, is available here.

Mother-Son Team Shine Light on Rare Form of Dementia Called FTD

In this article for online forum Caregiver Relief, journalist David Heist writes about the FTD resource What If It’s Not Alzheimer’s, A Caregiver’s Guide to Dementia. Updated in 2014 with the latest information about FTD, the book is edited by Lisa Radin, AFTD Board member, and her son, Gary, both of whom are certified FTD support group leaders.

AFTD is Hiring!

AFTD is actively recruiting for two open positions: Research Manager and Events Coordinator. Join an organization of creative, driven professionals dedicated to improving the quality of life of people affected by FTD, and driving research to a cure. Based in the Philadelphia area, AFTD has a growing presence in Washington, D.C., and national/international reach. View job descriptions and learn how to apply through these links:

Research Manager {posted May 2015}
Events Coordinator {posted July 2015}

Accelerating Drug Discovery for FTD…

The Alzheimer’s Drug Discovery Foundation (ADDF) and The Association for Frontotemporal Degeneration have issued their 2015 Request for Proposals.

Through this grant program, Accelerating DRUG DISCOVERY for Frontotemporal Degeneration, ADDF and AFTD seek to accelerate and support innovative drug discovery programs and biomarker development for FTD

ADDF/AFTD will provide grants for a one-year duration with the possibility of follow-on funding. Budgets averaging $150,000 to $200,000 are recommended, but are flexible depending on study design.

Prospective applicants must submit a Letter of Intent by September 8, 2015. The deadline date for applications is September 22, 2015.

View the RFP here.

A Labor of Love

Actress Connie Shulman, most known for her work in Orange is the New Black, spoke with Neurology Now about her experience documenting a friend’s decline due to FTD. Click here to read the article.