What is FTD?

The frontotemporal dementias are a group of progressive disorders that affect the frontal and temporal lobes of the brain. They are characterized by behavior, language and/or motor symptoms, and an inevitable deterioration in a person’s ability to function. But within FTD are multiple subtypes, changing terminology, and acronyms that sometimes can be quite daunting.

The fact is that the terminology will continue to shift over the coming years–but this is encouraging. The evolving scientific language reflects the increasing pace of scientific discovery. As physicians and researchers learn more about FTD at the cellular and molecular levels, the role of specific proteins, genes and compounds in development of the disease are identified. And as our understanding of these diseases changes, so too will the words we use to describe them. So you may find differences in the terms used within the field, but do not be shy about asking your physician –or AFTD—for clarification. And, more importantly, do not be discouraged – these shifts in vocabulary are an important sign of progress as research points the way to targets for treatment and a cure.