First Person Accounts

First Person Accounts of Research

Families often have many questions when they begin to consider participating in medical and scientific research.  The pieces on this page are written by people who have taken part in FTD research and want to share their experiences with others.  We are very grateful for their generosity as first hand experiences provide a unique and critical perspective on this issue.  

 If you have a story you would like to share, please contact us at info@ftd-picks.org.

 

P and A Lester (3)A Visit to NINDS

In October, 2008 Paul Lester took his wife Arnette to Bethesda, Maryland to participate in FTD research at the National Institute of Neurological Disorders and Stroke (NINDS).  He shares the activities, challenges and observations of their nine day visit in this essay.  To read more, click here.