Support for Patients

We are aware of a growing interest among people diagnosed with FTD for information and support tailored to their needs.  Several medical centers that serve people with FTD have developed programs for patients and we expect additional resources to grow. 

This page will contain the resources AFTD is aware of for patients.  We look forward to expanding the list as more supports become available.

Columbia University

An Early-Stage Dementia Group sponsored by Columbia meets twice a month at the Metropolitan Museum of Art as part of the Museum Outreach Education Program.  The group serves people who are able to share their experiences and feelings with others. Some sessions follow a discussion format, while others are held in the studio where members create art.  Every few months, the museum provides an educator to lead a special tour for the group members and their spouses or caregivers. Participants and their caregivers receive free entry to the museum each time they meet.  For more information contact Jill Goldman at jg2673@columbia.edu.

UCSF Memory and Aging Center

People with FTD and other types of dementia meet monthly to create art in a supportive setting. Participants meet at the same time as UCSF’s caregiver support group, which allows caregivers to bring their relatives to the Center while the caregivers meet in a nearby room. For more information contact Tremaine Thomas at tthomas@memory.ucsf.edu.

University of North Carolina

CLUB FTD: Fun, Together and Determined is a program for people diagnosed with FTD or early on-set Alzheimer’s who are interested in socializing with others and participating in community service projects or leisure/recreational activities. The Club provides an opportunity for people to interact with others while providing respite for caregivers. It meets twice a week from 9am to 1pm. For more information contact Charlene Riedel-Leo at charlenerl@neurology.unc.edu.

FTD Support Forum

An online resource for sharing information and support that is open to both caregivers and those diagnosed with FTD.  For more information visit http://www.ftdsupportforum.com/