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International Resources
Services and resources for families dealing with FTD throughout the world are expanding. Below are resources outside of the U.S. and Canada that provide services to patients and families, as well as professionals.
Argentina
Institute of Cognitive Neurology
Dr. Facundo Manes, Director, Neurology and Neuropsychiatry
The Institute of Cognitive and Behavioral Neurology (Instituto de Neurología Cognitiva- INECO), is a state of the art specialist centre for the prevention, diagnosis and treatment of cognitive and behavioral disorders. It supports a wide range of empirical research in human cognitive neuroscience and neuropsychiatry. The institute offers diagnosis and treatment of a wide range of disorders including Alzheimer’s and related dementias. The institute also provides orientation, support and training to family and caregivers.
Engligh: http://www.neurologiacognitiva.org/en/
En Espanol: http://www.neurologiacognitiva.org/
Australia
FRONTIER – The Frontotemporal Dementia Research Group
Prince of Wales Medical Research Institute
Professor John Hodges and Dr Olivier Piguet
A clinical research group in Sydney, Australia dedicated to the study of frontotemporal dementia (FTD) and related disorders, notably motor neuron disease (Amyotrophic Lateral Sclerosis).
Alzheimer’s Australia
In February 2009, Alzheimer’s Australia and FRONTIER published Younger Onset Dementia: a Practical Guide which is a comprehensive resource for people facing FTD and other early onset dementias. It is available via the Alzheimer’s Australia website.
England
UCL Institute of Neurology works together with the National Hospital for Neurology
and Neurosurgery to provide evaluation, treatment and care for patients with a range of
neurological disorders, including frontotemporal dementia.
http://www.uclh.nhs.uk/Our+hospitals/National+Hospital+for+Neurology+and+Neurosurgery.htm
Picks Disease Support Group (PDSG)
is a service based organization whose main aims are to provide information and to support carers of people with frontotemporal dementia. The group meets several times a year in the United Kingdom and has an annual seminar open to professionals and carers. www.pdsg.org.uk
France
Lille–Bailleul Memory Center
Centre Medical des Monts de Flandre
Bailleul, France
Florence Pasquier, MD, Ph D. and Florence Lebert, MD, Ph.D, Directors
The Memory Center focuses on the care of people with non-Alzheimer’s dementia including FTD. Services include evaluation, diagnosis, and pharmaceutical treatment, as well as a range of continuing care management such as social care and family support. The center hosts a support group for caregivers and publishes a newsletter with information on FTD/Picks that is available on their website.
For more information on the FTD Unit at the Lille–Bailleul Memory Center visit their website
http://www.alzheimer-adna.com/DFT/DegenerescenceFT.html
The Netherlands
The Alzheimer’s Association- Netherlands
Alzheimer Nederland
Postbus 183
3980 CD Bunnik
T 030 – 659 69 00
Stichting Pick’s Lotgenoten (Foundation of Pick’s Fellow-sufferers)
A website started by Henrik-Jan van der Waal and his brothers after their mother was diagnosed with Pick’s disease to share information and support with others in the same situation. The effort has expanded into a foundation that offers contact to professionals, informational meetings, publications and personal assistance.
www.pick.nl and www.ftdexpertgroep.nl
***If you are aware of other resources that are not listed here please contact us at info@ftd-picks.org
