Middle Atlantic

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

Philadelphia’s Broad Street Run
When:  May 2, 2010
Philadelphia, PA

Are you a runner?  Join our friends at 95North to team up for “10 Miles to Tell 10 People.”   Rick Lyons at 95North knows the importance of increasing awareness of FTD through a friends experience with the disease.  He is urging runners to join their team for this run to raise awareness and funds for AFTD.  For more information visit 95North’s  website.  There’s still time to sign up…and the T-shirt you get will look great! 

Scoot for Scooter Run/Bike/Walk Fundraiser
When: May 16, 2010
Sandy Spring, Maryland

Allyson Sealfon and her family are in the process of planning a “Scoot for Scooter” 5k Run/Walk/Bike Event to honor their dad, Dave “Scooter” Scaggs and the legacy he has created though his career as a coach, teacher and mentor.  Mark your calendar for Sunday, May 16, 2010 at 10:00 am.  The event will be held at Sherwood High School in Sandy Spring, MD.   Visit their webpage for the event for more details: Scoot for Scooter.

Regional AFTD Advocacy Network Coordinator

Research and Medical Centers with particular FTD Focus

Columbia University

Sergievsky Center, Taub Institute
630 W. 168th St., P&S Box 16
New York, NY  10032

www.cumc.columbia.edu/dept/taub/pc/mdc.html

Contact: Jill Goldman, CGC
(212) 305-7382 or jg2673@columbia.edu

Drexel University College of Medicine

Memory and Cognitive Disorders Program
245 N. 15th St
Philadelphia, PA  19107

https://www.drexelmed.edu/Home/AboutOurFaculty/CarolLippa.aspx

 Contact: (215) 762-6915

Johns Hopkins FTD Center

 600 N. Wolfe St.
Baltimore, MD 21287

http://www.hopkinsmedicine.org/Psychiatry/geriatric_neuropsychiatry/frontotemporal_dementia/

 Contact: Mary Anne Wylie, M.S., R.N., A.P.N.
(410) 502-2981

University of Pennsylvania

Center for FTD
3400 Spruce Street, 3 W Gates
Philadelphia, PA 19104

http://www.uphs.upenn.edu/ftd/

Contact: Lauren Massimo, MSN, CRNP
(215) 349-5725

Support Groups in this Region

Delaware – Rehoboth area

Meeting time:
Every other Tuesday, 4:00 PM – 5:30 PM

Location:
Henlopen Junction Mall
715 Rehoboth Avenue
Rehoboth Beach, DE

Contact:
Dr Judith E. Pierson at (302) 227-6745 to verify the date
of the next meeting or for additional information

Delaware – Wilmington area

 Under the auspices of the Alzheimer’s Association Delaware Valley Chapter

Meeting time:
Last Friday of the month, 12:00 PM (bring a lunch if you want)

Location:
Christ United Methodist Church
6 N. Clifton Street in Wilmington

Contact:
Carol Lovett at (302) 475-0496

Maryland – Baltimore area

 Under auspices of Johns Hopkins Medical Institutions, FTD Clinic

Meeting time:
Second Wednesday of the month, 11:00 AM – 12:30 PM

Location:
Alzheimer’s Association
1850 York Road, Suite D
Timonium, MD 21093-5143

Contact:
Johns Hopkins FTD Clinic at (410) 502-2981 or Susan M. Newhouse, LCSW-C via email at: snewhouse@seniorsolutions-baltimore.com

Maryland – Metro DC area  (Starting April 2010)

Meeting time:
Last Monday of the month; informal networking at 6:00, meeting 6:30 PM -7:30 PM

Meeting location:
Arden Courts Kensington
4301 Knowles Court
Kensington, MD 20895

Contact:  
Elaine Rose at errose36@gmail.com 

New York – New York City area

Under the auspices of Columbia University and the NY chapter of the Alzheimer’s Association

Meeting time:
First and third Thursday of each month

Location:
Midtown Manhattan

Contact:
Jill Goldman, MS, MPhil, CGC, at (212) 305-7382 or via email at: jg2673@columbia.edu

New York – New York City area

This group is designed for adult children of someone with frontotemporal dementia. Under the auspices of Columbia University and the NY chapter of the Alzheimer’s Association

Meeting time:
Second and fourth Thursday of each month, 5:00-6:30PM

Location:
Midtown Manhattan

Contact:
Jill Goldman, MS, MPhil, CGC, at (212) 305-7382 or via email at: jg2673@columbia.edu

 New Jersey - Southern Delaware Valley

Under the auspices of the Alzheimer’s Association Delaware Valley Chapter

Meeting time:
Fourth Thursday of the month, 6:30 PM – 8:00 PM

Location:
3 Eves Drive
Marlton, NJ 08053

Contact:
Sidney Williams at (856) 797-1212 or via email at: Sidney.Williams@alz.org

Pennsylvania — Allentown area

Meeting time:
First Thursday of the month, 7:00 PM – 8:30 PM

Location:
The School House at Richland Friends Meeting House
Mill Road and Main Street
Quakertown, PA  18951

Contact:
Susan Miller Abbott at (610) 346-1937 or via email at: NASIsma@aol.com

Pennsylvania – Hershey area

 Under the auspices of the Penn State Hershey Medical Center Memory and
Cognitive Disorders Clinic

Meeting time:
Third Thursday of the month, 6:00 PM – 8:00 PM

Location:
Hershey Medical Center
30 Hope Drive, Room 1019
Hershey, PA 17033

Contact:
Mark Allshouse, B.A. at (717) 586-8351 or via email at: mea171@psu.edu

Pennsylvania - Philadelphia

 Targeted to younger adult children in their 20’s, 30’s and 40’s caring for a parent diagnosed with dementia
under the age of 65.  Under the auspices of the Delaware Valley Chapter of the Alzheimer’s Association.

Meeting time:
Third Thursday of the month, 6:00 PM – 7:30 PM
Optional continued discussion 7:30 PM – 8:00 PM

Location:
Ralston Penn Center, Room 346
3615 Chestnut St.
Philadelphia, PA 19104

Contact:
Call at (800) 272-3900 or Gary Radin at gary@garyradin.com

Pennsylvania – Philadelphia, Western suburbs

 Under the auspices of the Delaware Valley Chapter of the Alzheimer’s Association

Meeting time:
Third Thursday of the month, 7:00 PM – 9:00 PM

Location:
Bryn Mawr Presbyterian Church, The Witherspoon Room
625 Montgomery Ave.
Bryn Mawr, PA 19010

Information:
Susan Miller-Abbott at (610) 346-1937 or via email at: NASIsma@aol.com.