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Midwest
Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region
Upcoming Events
George F. Sidoris Memorial Golf Outing
The George F. Sidoris Memorial Golf Outing to Benefit AFTD will be held on Saturday, September 4, at the Lost Nation Golf Course, 38890 Hodgson Rd., in Willoughby, Ohio. Proceeds from this event will help fund FTD biomarker research; an added bonus is a very generous partnership with AFTD donors The Danis Family and the Alzheimer’s Drug Discovery Foundation, which is matching AFTD fundraising efforts in the area of drug discovery 3:1 (learn more about this and biomarker research on page 5 of the Summer 2010 issue of the AFTD newsletter here). The cost to participate in the golf outing is $85 per person and includes green fees, cart, lunch and dinner. Registration and lunch will begin at 1 p.m., followed by a shotgun start at 2 p.m. and dinner at 6:30 p.m. For additional information, email csidoris@aol.com or call 702-595-8609. For a registration form, go to George F. Sidoris Memorial Golf Outing.
7th International Conference on FTD
The 7th International Conference on Frontotemporal Dementias is set for Wednesday, October 6, through Friday, October 8, in Indianapolis. Researchers from around the world will discuss emerging discoveries in the science and medicine of FTD. The first day will also feature a program for caregivers on FTD diagnosis, medical management, legal and financial issues, and support services. At day’s end, a dinner, sponsored by AFTD at the Eiteljorg Museum, will enable caregivers to mingle informally with each other and with researchers.
The Indianapolis Marriott Downtown, the Courtyard Indianapolis at the Capitol, and the Fairfield Inn and Suites are offering discounted rates on hotel rooms for attendees of the International Conference. The Indianapolis Marriott Downtown is hosting the conference; the Courtyard Indianapolis at the Capitol and the Fairfield Inn and Suites are about one block away.
2011 FTD and PPA Caregiver Education and Support Conference
The 2011 FTD and PPA Caregiver Education and Support Conference has been sceduled for Monday, March 21 from 8 a.m. to 4 p.m. at Hughes Auditorium at the Robert H. Lurie Medical Research Center, 303 E. Superior Street, Chicago. The conference is sponsored by the Cognitive Neurology and Alzheimer’s Disease Center of the Northwestern University Feinberg School of Medicine. For more information about the conference as it becomes available, go to http://www.brain.northwestern.edu/pdfs/ppa/2011_FTD-PPA_conference_flyer.pdf.
Travel Grants for Caregivers
The Association for Frontotemporal Dementias offers financial assistance for caregivers interested in attending caregiver conferences. Travel grants may be used to defray the cost of traveling, lodging, conference fees and/or care for a loved one with FTD so that caregivers can attend.
Regional AFTD Advocacy Network Coordinator
Carol Maglich cmaglich@windstream.net
Research and Medical Centers with particular FTD Focus
Indiana Alzheimer Disease Center
Indiana University School of Medicine
635 Barnhill Drive
Medical Science Room A-142
Indianapolis, IN 46202-5120
Contact 317-274-1590
Mayo Clinic, Rochester
4111 Highway 52 North
Rochester, MN 55901
www.mayoclinic.org/frontotemporal-dementia/
Contact: 507-538-3270
Northwestern University
Cognitive Neurology & Alzheimer’s Disease Center
320 E. Superior Street, #11-453B
Chicago, IL 60611
Contact: Darby Morhardt
(312) 908-9432 or d-morhardt@northwestern.edu
Support Groups in this Region
Illinois – Chicago
For people diagnosed with PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center.
Early-Stage PPA Education and Support Group (for diagnosed individuals)
Meeting time:
Alternate Thursdays (Summer 2010), 1 to 2 :30 p.m.
Location:
Cognitive Neurology and Alzheimer’s Disease Center
Northwestern University Feinberg School of Medicine
Contact:
Mary O’Hara, LCSW, at 312-503-0604 or m-ohara@northwestern.edu
For caregivers of individuals diagnosed with FTD and PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center
Meeting time:
Third Monday of the month, 6:00 PM – 7:30 PM
Location:
Northwestern Memorial Hospital, Downtown Chicago
Contact:
Darby Morhardt, MSW, LCSW at (312) 908-9432
Details posted on http://brain.northwestern.edu
Illinois – Chicago area, Downers Grove
Support Group for FTD caregivers and those with other dementias
Meeting time:
First Tuesday of the month, 7:00 PM – 8:30 PM
Location:
Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois 60516
Contact:
Lorene Schlie at loreneschlie@comcast.net
Illinois – Chicago area, Glen Ellyn
For FTD caregivers, sponsored by Arden Courts of Glen Ellyn
Meeting time:
Second Tuesday of each month, 10:00 AM
Location:
Arden Courts
2S706 Park Blvd.
Glen Ellyn, IL 60137
Contact:
Patti Terkovich at 630-469-5500
Michigan – Grand Rapids
Co-sponsored by the Alzheimer’s Association, Greater MI Chapter
Meeting time:
First Wednesday of the month, 6:00 PM – 7:30 PM
Location:
Saint Mary’s Health Care Hauenstein Center Community Room
220 Cherry Street SE
Grand Rapids, MI 49503
Contact:
Karen S. Bugg, R.N., L.M.S.W. at (616) 685-5371
Minnesota – Minneapolis/St Paul area
For FTD caregivers and patients
Meeting time:
Saturdays – 9:00 AM to 11:00 AM
Location:
University of Minnesota
1985 Buford Avenue - McNeal Hall
St. Paul, MN 55108
Contact:
Janet Yeats, MA LAMFT, Clinical Administrator at 612-624-9424
University of Minnesota, Wayne Caron Family Caregiving Center
Ohio – Cleveland area
Collaboration of the Alzheimer’s Association Cleveland Area Chapter and
University Hospitals Memory and Cognition Center
Meeting time:
First Wednesday of the month, 6:00 PM – 8:00 PM
Location:
Alzheimer’s Association
23215 Commerce Park Drive, #300
Beachwood, OH 44122
Contact:
Lauren Tortorici, LSW, MSSA, Alzheimer’s Association
at (216) 231-1484 or (800) 272-3900
Marianne Sanders, RN, Memory and Cognition Center at (216) 844-6394
Ohio – Columbus area
Meeting time:
First Saturday of the month, 9:30 AM – 11:30 AM
Location:
Alzheimer’s Association
3380 Tremont Rd.
Columbus, Ohio 43221
Contact:
Anne Bare, R.N. B.S. or Bill Keating at (614) 457-6003 or (800) 272-3600
Ohio – Dayton area
Meeting time:
First Tuesday of the month, 6:30 PM
Location:
Alzheimer’s Association, Miami Valley Chapter
3797 Summit Glen Dr. Suite G100
Dayton, Ohio
(Located behind Showcase Theaters by the Dayton Mall)
Contact:
Alice Stryker at (937) 396-6067
