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Southwest
Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region
Upcoming Events
3rd Annual Quest for the Cure Golf Tournament
When: Monday, April 26, 2010
Rocklin, CA
The Walter Charitable Fund will host its Third Annual Quest for the Cure Golf Tournament on April 26, 2010 at the Whitney Oaks Golf Club in Rocklin, CA. Each year the tournament raises money to benefit AFTD’s research initiatives. Join in the fun for a great day of golf, challenging golfer’s contests, raffles, food and more! To become a sponsor of this great event or to register please visit www.aftdgolf.com or call 916-835-5780.
Regional AFTD Advocacy Network Coordinator
Jodee Kalmen jodeekalmen@cox.net
Research and Medical Centers with particular FTD Focus
Mayo Clinic – Scottsdale
13400 East Shea Boulevard
Scottsdale, AZ 85259
http://www.mayoclinic.org/frontotemporal-dementia/
Contact: 480-301-8484
University of California, San Francisco
Memory and Aging Center
350 Parnassus Ave. Suite 706
San Francisco, CA 94117
Contact: (415) 476-6880
University of California, Los Angeles
FTD Clinic
10911 Weyburn Ave., Suite 200
Los Angeles, CA 90095
www.adc.ucla.edu/AA_UCLA_FD_NC.asp
Contact: 310-794-6039
Support Groups in this Region
Arizona – Phoenix
Under the auspices of Hospice of the Valley and Banner Alzheimer’s Institute
Meeting time:
Second Tuesday of the month from 12:30-2 pm
Location:
Third Floor Library at the Banner Alzheimer’s Institute,
901 E Willetta Street
Phoenix, Arizona 85006.
Contact: :
Geri Hall, PhD, ARNP, FAAN at 602-239-6867
or e-mail Rebekah Wilson at RWilson@hov.org.
California – Greater Sacramento area
Under the auspices of the Alzheimer’s Association, Northern California Chapter
Meeting time:
Fourth Wednesday of the month, 7:00 PM – 8:30 PM
Location:
Fair Oaks Presbyterian Church
11427 Fair Oaks Blvd
Fair Oaks, CA 95628
Contact:
Tonae Hasik at (916) 799-5116
California – Los Angeles area
In partnership with UCLA
Meeting time:
Every other Monday, 7:30 PM – 9:00 PM
Location:
Contact Joanne Sackheim for location details
Contact:
Joanne Sackheim at (310) 276-0347 or via email at: josacks1@aol.com
California – Los Angeles area
Atypical Parkinsonian Disorders support group. For past and present caregivers, family and their loved ones with Atypical Parkinsonian Disorders to include PSP, CBD, LBD, MSA and others.
Meeting time:
Every third Saturday, 1:30 PM – 3:30 PM
Location:
Kaiser Permanente West Los Angeles Medical Center
6041 Cadillac Avenue, Los Angeles, CA 9003
Clinic Building, Basement Level, Classroom D
Contact:
Larry Schenker at (310) 441-1488 or via email at: atypical.parkinsonian.disorder@gmail.com
California – Los Angeles/Orange County area
A collaboration between the University of California at Irvine and the Orange County Chapter of the Alzheimer’s Association
Meeting time:
First Wednesday of the month, 9:30 AM
Location:
On the campus at UC, Irvine – Must call ahead for directions and parking sticker
Contact:
Shirley Sirivong at (949) 824-8135
California – San Francisco
Under the auspices of UCSF Memory and Aging Center
Meeting time:
Second Thursday of the month, 2:00 PM – 3:30 PM
Location:
University of California, San Francisco
Memory and Aging Center
707 Parnassus Ave., Room D3209
San Francisco, CA 94143
Contact:
Robin Ketelle at (415) 514-2058
California – San Francisco
For adult children of persons with FTD. Under auspices of UCSF Memory and Aging Center
Meeting time:
Third Thursday of the month in the early evening.
Location:
This support group meets monthly via a toll-free conference call and people need not be located in the Bay Area to participate. Anyone interested should contact the facilitator below for more information and the necessary call-in number and passcode.
Contact:
Tricia See, ScM, CGC, at (415) 476-8613 or via email at: tsee@memory.ucsf.edu
California – San Francisco area
Caregiver support group for those caring for loved ones with CBD and PSP
Meeting time:
Sundays, 5:00 PM – 7:00 PM, about every 6 weeks (call for schedule)
Location:
Mimi’s Cafe
2208 Bridgepointe Parkway
San Mateo, CA 94404
Contact:
Robin Riddle at (650) 233-9277
Colorado – Colorado Springs
Under the auspices of the Alzheimer’s Association, Colorado Chapter
Meeting time:
Third Wednesday of the month, 7:00 PM
Location:
First United Methodist Church
420 North Nevada (Room 231)
Colorado Springs, CO
Contact:
Alzheimer’s Association at (719) 266-8773 or facilitator Sandy Clarke via email at: coloradospringsbg.rc@sunriseseniorliving.com
Colorado – Denver
Under the auspices of the University of Colorado Health Sciences Center
Meeting time:
Third Tuesday of the month, 4:30PM
Location:
Rose Medical Center
Physicians Office Building
Conference Room, “Goodstein 4″
Ground Level [a/k/a Basement]
4500 E. 9th Avenue
Denver, CO
Information:
Terencia Beauvais-Nikl, RN at (303) 985-2440
Colorado – Denver area
Adult and Child FTD Support groups
Meeting time:
Second Tuesday of the month, 5:00 PM – 7:00 PM
Location:
Cornerstone Baptist Church, located at the SW corner of Lonetree Parkway and Lincoln Ave., Lonetree, CO
Adults – Room 133, Children – Room 102
Contact:
Terencia Beauvais-Nikl, RN at (303) 985-2440
Utah – Salt Lake City area
Meeting time:
Second Wednesday of the month, 10:00 AM – 11:30 AM
Location:
Sandy Senior Center
9310 South, 1300 East
Sandy, UT
Contact:
Bonnie Shepherd at (801) 231-3442 or via email at: bbshepherd@comcast.net
Utah – Salt Lake City area
Younger onset (prior to age 60) for FTD and Alzheimer’s
Meeting time:
Second Thursday of the month, 5:00 PM – 7:00 PM
Location:
Please call for information
Contact:
Diana Cook (435) 849-2440 or via email at: Healthyjourney@msn.com
