Southwest

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Regional AFTD Advocacy Network Coordinator

Jodee Kalmen  jodeekalmen@cox.net

Research and Medical Centers with particular FTD Focus

Mayo Clinic – Scottsdale

13400 East Shea Boulevard
Scottsdale, AZ  85259

http://www.mayoclinic.org/frontotemporal-dementia/

Contact: 480-301-8484

University of California, San Francisco

Memory and Aging Center
350 Parnassus Ave.  Suite 706
San Francisco, CA  94117

www.memory.ucsf.edu/ftd/

Contact: (415) 476-6880

University of California, Los Angeles

FTD Clinic
10911 Weyburn Ave., Suite 200
Los Angeles, CA  90095

         http://www.neurology.ucla.edu/index.jsp?m=2&s=4_3

Contact: 310-794-2550

Support Groups in this Region

Arizona – Phoenix

Under the auspices of Hospice of the Valley and Banner Alzheimer’s Institute

Meeting time:
Second Tuesday of the month from 12:30-2 pm

Location:
Third Floor Library at the Banner Alzheimer’s Institute,
901 E Willetta Street
Phoenix, Arizona 85006.

Contact: :
Geri Hall, PhD, ARNP, FAAN at 602-239-6867
or e-mail Rebekah Wilson at RWilson@hov.org.

 

California – Greater Sacramento area

 Under the auspices of the Alzheimer’s Association, Northern California Chapter

Meeting time:
Fourth Wednesday of the month, 7:00 PM – 8:30 PM

Location:
Fair Oaks Presbyterian Church
11427 Fair Oaks Blvd
Fair Oaks, CA 95628

Contact:
Tonae Hasik at (916) 799-5116

 

California – Los Angeles area

In partnership with UCLA

Meeting time:
Every other Monday, 7:30 PM – 9:00 PM

Location:
Contact Joanne Sackheim for location details

Contact:
Joanne Sackheim at (310) 276-0347 or via email at: josacks1@aol.com

 

  

California – Los Angeles area

Atypical Parkinsonian Disorders support group. For  past and present caregivers, family and their loved ones with Atypical Parkinsonian Disorders to include PSP, CBD, LBD, MSA and others.

Meeting time:
Every third Saturday, 1:30 PM – 3:30 PM

Location:
Kaiser Permanente West Los Angeles Medical Center
6041 Cadillac Avenue, Los Angeles, CA 9003
Clinic Building, Basement Level, Classroom D

Contact:
Larry Schenker at (310) 441-1488 or via email at: atypical.parkinsonian.disorder@gmail.com

 

California – Los Angeles/Orange County area

A collaboration between the University of California at Irvine and the Orange County Chapter of the Alzheimer’s Association

Meeting time:
First Wednesday of the month, 9:30 AM

Location:
On the campus at UC, Irvine – Must call ahead for directions and parking sticker

Contact:
Shirley Sirivong at (949) 824-8135

 

California – San Francisco

Under the auspices of UCSF Memory and Aging Center

Meeting time:
Second Thursday of the month, 2:00 PM – 3:30 PM

Location:
University of California, San Francisco
Memory and Aging Center
707 Parnassus Ave., Room D3209
San Francisco, CA 94143

Contact:
Robin Ketelle at (415) 514-2058

 

California – San Francisco

For adult children of persons with FTD. Under auspices of UCSF Memory and Aging Center

Meeting time:
Third Thursday of the month in the early evening.

Location:
This support group meets monthly via a toll-free conference call and people need not be located in the Bay Area to participate.  Anyone interested should contact the facilitator below for more information and the necessary call-in number and passcode.

Contact:
Tricia See, ScM, CGC, at (415) 476-8613 or via email at: tsee@memory.ucsf.edu

 

California – San Francisco area

Caregiver support group for those caring for loved ones with CBD and PSP

Meeting time:
Sundays, 5:00 PM – 7:00 PM, about every 6 weeks (call for schedule)

Location:
Mimi’s Cafe
2208 Bridgepointe Parkway
San Mateo, CA 94404

Contact:
Robin Riddle at (650) 814-0848

 

Colorado – Colorado Springs

Under the auspices of the Alzheimer’s Association, Colorado Chapter

Meeting time:
Third Wednesday of the month, 7:00 PM

Location:
First United Methodist Church
420 North Nevada (Room 231)

Colorado Springs, CO

Contact:
Alzheimer’s Association at (719) 266-8773 or facilitator Sandy Clarke via email at:  coloradospringsbg.rc@sunriseseniorliving.com 

 

Colorado – Denver

Under the auspices of the University of Colorado Health Sciences Center

Meeting time:
Third Tuesday of the month, 4:30PM

Location:
Kaiser Permanente
Skyline Building
4th Floor Conference Room
1375 E. 20th Avenue
Denver, CO

Information:
Terencia Beauvais-Nikl, RN at (303) 985-2440

Colorado – Denver area

Adult and Child FTD Support groupsMeeting time:
Second Tuesday of the month, 5:00 PM – 7:00 PM

Location:
Cornerstone Baptist Church, located at the SW corner of Lonetree Parkway and LincolnAve., Lonetree, CO
 Adults – Room 133, Children – Room 102

Contact:
Terencia Beauvais-Nikl, RN at (303) 985-2440

 

Nevada – Las Vegas area

Meeting time: Second Wedesday of each month, 7 to 8:30 p.m.

Location: Glazier’s, Desert Marketplace, 8525 W. Warm Springs Road (Durango and Warm Springs Roads), Las Vegas, Nevada 89113

Before Attending Please Contact: Lisa Radin at lradin@iglide.net or Alzheimer’s Association, Desert Southwest Chapter – Southern Nevada Region, at 702-248-2770.

 

Utah – Salt Lake City area

Meeting time:
Second Wednesday of the month, 10:00 AM – 11:30 AM

Location:
Sandy Senior Center
9310 South, 1300 East
Sandy, UT

Contact:
Bonnie Shepherd at (801) 231-3442 or via email at: bbshepherd@comcast.net

Utah – Salt Lake City area

Younger onset (prior to age 60) for FTD and Alzheimer’s

Meeting time:
Second Thursday of the month, 5:00 PM – 7:00 PM

Location:
Please call for information

Contact:
Diana Cook (435) 849-2440 or via email at: Healthyjourney@msn.com